My Life



I haven't written on this blog for quite some time. To be honest, it's been one heck of a storm...no...hurricane! I felt like I was being tossed to and fro in a turbulent ocean. I had good days and then boom, out of nowhere, one flare after the other until I was literally bedridden for weeks and at one point months. Yes, I was very depressed about it and didn't want to do anything for myself. I did, however, get up ever so painfully to do my usual mom-duties like cooking meals, doing laundry, etc. It just took me WAY longer than usual. I was severely limping and my left leg was stuck in a bent position and felt like it was constantly being sawed off 24/7. I seriously almost went insane with the pain of not only my knee but also my wrists, shoulders, neck, feet ad ankles. Not to mention my vision was being affected as well. And as I type, I currently have inflammation on my skin (several rash-like areas on my neck and arms). Great.

Thankfully I picked up the phone and asked to get a steroid shot in my knee (this was back in August) and it worked like a charm (at least for now and it's December)! I guess that's the only good news as far as this RA goes. My last infusion was a bust. It didn't do anything. But I have to say that this is only the second time it happened. All other infusions (I take Simponi) went very well. My mom said that it probably was a bad "batch". Probably. My next infusion is 4 weeks away.

So yesterday I started juicing and took PASTA, RICE and BREADS out of my diet for now. Pain went down a bit (but skin is flaring...psoriatic arthritis I guess???) Anyway, I'm on a special juice diet to reduce my cholesterol since the meds raised it out the roof!

So that's where I'm at. I'm taking my vitamins again and boy does it make a difference for me! At this point I don't know if the juicing or vitamins are doing the job but I'll take both! I've been drinking more green tea as well (with a spoonful of honey). It's my little treat. Yesterday, I had so much energy and less pain that I even washed the carpet in the living room for goodness sake! My husband was like, "I haven't seen you so mobile in two years!" I still hurt, I'm just pushing through it...but a couple months ago I couldn't push through it without crying. It was bad. Really bad. Just thankful that the  waves are not crashing in on me right now...just a wave. Well fellow sufferers, I tip my hat to you all who have been dealing with this disease (I'm going on 4 years). Hoping for a cure...praying for a miracle. God bless!!!!

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